Poor function and stability in the body. Lacks the ability to walk or stand and can not get up or sit down.
Work and Living Situation:
I live at home alone with help from my caregiver, Annika.
My goal is to live as long as possible with the best quality of life that I can. It may sound dark, but with this disease, there is only one way out. The question is when.
Benefits of REAL 9100
My life nowadays is completely dependent on others. I have a hard time doing anything at all on my own. Some people are very touched when they hear me say that but I have chosen to be grateful. Grateful that are assitants and aids that make my everyday life completely okay according to the conditions. Annika usually makes sure that I go out everyday. At least a little turn. It is usually nice but I freeze very easily. Especially the toes so there are usually no long trips. I used to have an electric wheelchair, but I found it difficult to keep up and control it and then I got a REAL chair. It was hard to lose the opportunity to go around by myself. With the REAL chair, Annika is able to help move me around and the chair is small enough to fit everywhere in my home.